Continued Food Intolerance Issues

The struggle continues with our Little Mister.  After 5 weeks on a soy/dairy free diet, we were referred to see a GI Specialist.  The soonest appointment we could get was nearly 4 weeks out...I wasn't comfortable waiting that long while my son continued to have blood in his stools.  Surely that is proof that something is not right in his body and I didn't want 4 more weeks of potential damage to simply continue.

I polled both sides of our family for their problematic foods.  The list was so incredibly long!  I spent hours researching his potential diagnosis of FPIES (Food Protein Induced Entercolitis Syndrome) and other related diagnosis like Allergy Proctocolitis and MSPI (Milk Soy Protein Intolerance).  It brought on some stress my hubby felt was unnecessary (he told me to stop internet-diagnosing), but in the long run, I'm glad because now I feel better equipped and more understanding of what issues we have and what they could be later down the road.

I also researched many different ways to do a "Total Elimination Diet" or TED.  The typical TED doesn't work for most FPIES babies since rice and oats are the most common triggers.  My family has dairy and gluten issues as well as poultry intolerances.  So I came up with my own TED and am on day 6 of it.

My diet has been trimmed down to the mere basics of:  Quinoa, Apples, Bananas, Pork, Kale, Squash and Coconut.  I haven't been purely strict to those, I have allowed myself maple sugar, cinnamon, garlic, onion, thyme and rosemary so that I can have some different flavors at least!

Day 4 saw my son's bloody stools disappear.  His diapers look more and more normal every day.  Prior to this diet, he had symptoms of "Silent Reflux", now it seems to be more pronounced reflux with more frequent spit ups.  I don't know if that is part of his body adjusting to the diet changes, or if the doctor might suggest I swap out one of my TED foods for something else.